The National Organization for Rare Disorders (NORD)


Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

Check here to read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

News Briefs

The Key to the Closet
is the Key to the Kingdom:
A Common Lesson of Rare Diseases

A column by Dr. Frederick S. Kaplan, M.D. - July 2006

View the PDF

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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Previous News Briefs

ICORD 2008

FDA and European Union Adopt Shared Form

NORD Representatives Address Congress

CETT Increases Access to Genetic Tests

NORD Honors Innovators at 2007 Tribute Banquet

FDA Approves First Product for PNH

NORD Staff and Rare-Disease Researchers Describe Their Work for Wife of President of Germany

A Common Lesson of Rare Diseases

NORD Issues RFPs

Deadline Announced for Grant Applications

Conference in Korea Focuses on Rare Diseases

FDA Approves Revlimid For Multiple Myeloma

Penn Researchers Pinpoint Cause of FOP

FDA Approves HDE for Rare Disorder of Placenta

CFC Genes Identified With Help of Patient Organization

Saving Andy Martin’s Cells

Haffner Honored by Royal College of Physicians

NORD President Honored For Health Advocacy

NIH Opens New Clinical Research Hospital

Gulf War ALS Study Results Reported

Researchers Identify Progeria Gene

Dystonia Patients Gain Access to "Brain Pacemaker"

Scientists Block CJD-Like Illness in Mice

Genetic Signature Linked to Severe Lupus Symptoms

Genes Linked to Methylmalonic Aciduria Identified

French Researchers Claim a Cure for Severe Sickle Cell

NF1 Research: When a Good Gene Goes Bad

Thalidomide Shows Promise

For Smallpox: Vaccine Production on Target

NORD Member Organization Update August 2002

FDA Approves New "Orphan Drug"

Supreme Court Narrows Disability Law

Dramatic Results Reported in Stiff Person Syndrome Study

Gulf War Vets Have Higher Rate of ALS

Diseases of Bioterrorism

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Last modified Wednesday, November 05, 2008