The National Organization for Rare Disorders (NORD)

Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Board of Directors 2010

CHAIR

Frank J. Sasinowski

VICE CHAIR

Carolyn Asbury, PhD

SECRETARY

Josephine Grima, PhD

TREASURER

Stephen E. Bajardi

DIRECTORS

Estelle Benson

James Broatch

Claire A. Centrella

Brenda Duffy

Nancy Harris

Christopher Jennings

Emil Kakkis, MD, PhD

Marybeth Krummenacker

Desiree Lyon

Mary Sprague

Judit Ungar

Agnes Varis, PhD

Charlene Waldman

Wendy White

Over 1200 Disease Reports
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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

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Last modified Thursday, May 27, 2010