Disease Information from NORD, National Organization for Rare Disorders, Inc.

The National Organization for Rare Disorders (NORD)

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This is the list of diseases currently covered in the Rare Disease Database.

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• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

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Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Alpha-1 Association
a/k/a: A1A

Address:
2937 SW 27th Avenue
Suite 106
Miami, FL 33133

Phone: 305-648-0088
Fax: 305-648-0089
800 Number: 800-521-3025
TDD: --
Email Address: info@alpha1.org

The Alpha-1 Association is a non-profit, voluntary health organization that was formed to provide information and support to individuals and families affected by alpha-1-antitrypsin deficiency. Alpha-1-antitrypsin deficiency is a rare hereditary metabolic disease characterized by low levels of the enzyme alpha-1-antitrypsin and progressive degenerative and destructive changes in the lungs. Founded in 1991, the organization functions as a clearinghouse for information to assist healthcare professionals and affected individuals. In addition, it engages in patient advocacy and aids in the support of medical research into the control and cure of alpha-1-antitrypsin deficiency. Educational materials produced by the association include brochures, newsletters, and videos.

Chapters: 68
Website: http://www.alpha1.org

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Last modified Tuesday, September 07, 2010