NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
|
|
|
The National Organization for Rare Disorders (NORD) web site, its databases,
and the contents thereof are copyrighted by NORD. No part of the NORD web
site, databases, or the contents may be copied in any way, including but not
limited to the following: electronically downloading, storing in a retrieval
system, or redistributing for any commercial purposes without the express
written permission of NORD. Permission is hereby granted to print one hard
copy of the information on an individual disease for your personal use,
provided that such content is in no way modified, and the credit for the
source (NORD) and NORD’s copyright notice are included on the printed copy.
Any other electronic reproduction or other printed versions is strictly
prohibited.
The information in NORD's Rare Disease Database is for educational purposes only. It
should never be used for diagnostic or treatment purposes. If you have questions regarding
a medical condition, always seek the advice of your physician or other qualified health
professional. NORD's reports provide a brief overview of rare diseases. For more specific
information, we encourage you to contact your personal physician or the agencies listed as
"Resources" on this report.
Copyright 1988, 1989, 2000, 2001, 2007, 2009
Synonyms of AIDS Dysmorphic Syndrome
- Dysmorphic Acquired Immune Deficiency Syndrome
- Dysmorphic AIDS
- Fetal Acquired Immune Deficiency Syndrome (AIDS)
- Fetal AIDS Infection
- Fetal Effects of AIDS
- HIV Embryopathy
- Perinatal AIDS
Disorder Subdivisions
General Discussion The term "AIDS dysmorphic syndrome" or "HIV embryopathy" has been used by some researchers to describe specific facial malformations (i.e., craniofacial dysmorphism), an unusually small head, and growth deficiency in some infants infected with HIV.* Such craniofacial abnormalities have included a prominent, boxlike forehead; large, wide eyes; a flattened nasal bridge; and an unusually pronounced philtrum, which is the vertical groove in the center of the upper lip.
However, many investigators have since questioned the significance of these observations. Such researchers indicate that there is lack of evidence for characteristic craniofacial malformations in infants who acquired HIV infection from their mother before, during, or shortly after birth (i.e., perinatally).
*HIV is the abbreviation for the human immunodeficiency virus, a retrovirus that infects certain white blood cells called helper T cells (CD4+ cells). HIV infection leads to progressive deterioration of the body's immune system and causes acquired immunodeficiency syndrome (AIDS). .
Organizations related to AIDS Dysmorphic Syndrome
- AIDS.ORG
1728 Laurel Canyon Boulevard, Suite C
PO Box 69491 Los Angeles CA 90069
Phone #: 213-845-4180
800 #: --
e-mail: r.newhart@aids.org
Home page: http://www.aids.org
- Arc
1660 L Street, NW, Suite 301
Washington DC 20036
Phone #: 202-534-3700
800 #: 800-433-5255
e-mail: info@thearc.org
Home page: http://www.thearc.org
- Centers for Disease Control and Prevention
1600 Clifton Road
Atlanta GA 30333
Phone #: 404-639-3534
800 #: 800-232-4636
e-mail: cdcinfo@cdc.gov
Home page: http://www.cdc.gov/
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- Jack Miller Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030 Chicago IL 60637
Phone #: 773-702-5659
800 #: N/A
e-mail: N/A
Home page: http://millercenter.uchicago.edu
- NIH/National Institute of Allergy and Infectious Diseases
6610 Rockledge Drive
MSC 6612 Bethesda MD 20892-6612
Phone #: 301-496-5717
800 #: --
e-mail: N/A
Home page: http://www.niaid.nih.gov/
- amfAR (Foundation for AIDS Research)
120 Wall Street
13th Floor New York NY 10005-3908
Phone #: 212-806-1600
800 #: 800-392-6327
e-mail: webmaster@amfar.org
Home page: http://www.amfar.org
|
|