NORD's
Washington Office
 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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"Resources" on this report.
Copyright 1985, 1988, 1992, 1993, 1994, 1998, 2002, 2010
NORD is very grateful to Howard W. Francis, MD, Associate Professor, and Yuri Agrawal, MD, Fellow, Division of Otology and Neurotology, Department of Otolaryngology-Head and Neck Surgery, Johns Hopkins University, for assistance in the preparation of this report.
Synonyms of Acoustic Neuroma
- acoustic neurilemoma
- acoustic neurinoma
- fibroblastoma, perineural
- neurinoma of the acoustic nerve
- neurofibroma of the acoustic nerve
- schwannoma of the acoustic nerve
- vestibular schwannoma
Disorder Subdivisions
General Discussion
An acoustic neuroma, also known as a vestibular schwannoma, is a rare benign (non-cancerous) growth that develops on the eighth cranial nerve. This nerve runs from the inner ear to the brain and is responsible for hearing and balance (equilibrium). There is no standard or typical pattern of symptom development, although hearing loss in one ear (unilateral) is the initial symptom in approximately 90 percent of cases. Additional findings include ringing in the ears (tinnitus) and dizziness. The symptoms of an acoustic neuroma occur from the tumor pressing against the eighth cranial nerve and disrupting its ability to transmit nerve signals to the brain. An acoustic neuroma is not cancerous (malignant); it does not spread to other parts of the body. The reason an acoustic neuroma forms is unknown.
Organizations related to Acoustic Neuroma
- Acoustic Neuroma Association
600 Peachtree Parkway, Suite 108
Cumming GA 30041
Phone #: 770-205-8211
800 #: 877-200-8211
e-mail: info@anausa.org
Home page: http://www.anausa.org
- Acoustic Neuroma Association of Canada
171A Rink Street, Suite 163
Peterborough
Ontario None K9J 2J6
Phone #: (78-0) -428-3384
800 #: (80-0) -561-2622
e-mail: info@anac.ca
Home page: http://www.anac.ca
- Alexander Graham Bell Association for the Deaf and Hard of Hearing
3417 Volta Place, NW
Washington D.C. 20007-2778
Phone #: 202-337-5220
800 #: 866-337-5220
e-mail: info@agbell.org
Home page: http://www.agbell.org
- American Academy of Audiology
11730 Plaza America Drive, Suite 300
Reston VA 20190
Phone #: 703-790-8466
800 #: 800-222-2336
e-mail: infoaud@audiology.org
Home page: http://www.audiology.org
- American Tinnitus Association
522 S.W. Fifth Avenue
Suite 825
Portland OR 97204
Phone #: 503-248-9985
800 #: 800-634-8978
e-mail: tinnitus@ata.org
Home page: http://www.ata.org
- Better Hearing Institute
1444 I Street, NW, Suite 700
Washington DC 20005
Phone #: 202-449-1100
800 #: 800-327-9355
e-mail: mail@betterhearing.org
Home page: http://www.betterhearing.org
- British Acoustic Neuroma Association
Oak House B
Ransom Wood Business Park
Southwell Road West
Mansfield
Nottinghamshire Intl NG21 0HJ
Phone #: 016-23 -632143
800 #: 080-0 6-52 3143
e-mail: admin@bana-uk.com
Home page: http://www.ukan.co.uk/bana/
- Children's Tumor Foundation
95 Pine Street, 16th Floor
New York NY 10005
Phone #: 212-344-6633
800 #: 800-323-7938
e-mail: info@ctf.org
Home page: http://www.nf.org
- Deafness Research Foundation
641 Lexington Avenue, Fl 15
New York NY 10022-4503
Phone #: 212-328-9480
800 #: 866-454-3924
e-mail: jpizarro@drf.org/
Home page: http://www.drf.org/
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- NIH/National Institute on Deafness and Other Communication Disorders (Balance)
National Temporal Bone, Hearing
and Balance Pathology Resource Registry
Massachusetts Eye & Ear Infirmary
243 Charles Street
Boston MA 02114-3096
Phone #: --
800 #: 800-822-1327
e-mail: TBRegistry@meei.harvard.edu
Home page: http://www.tbregistry.org
- Vestibular Disorders Association (VEDA)
P.O. Box 13305
Portland OR 97213
Phone #: 503-229-7705
800 #: 800-837-8428
e-mail: veda@vestibular.org
Home page: http://www.vestibular.org
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