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Acromegaly

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Synonyms of Acromegaly
  • Marie Disease

Disorder Subdivisions



General Discussion
The information contained in the Rare Disease Database is provided for educational purposes only. It should not be used for diagnostic or treatment purposes. If you wish to obtain more detailed information about this disorder, please contact your personal physician and/or the agencies listed in the "Resources" section this report.

Acromegaly is a rare, slowly progressive chronic disorder that affects adults. Although it is most often diagnosed in middle aged adults, it is important to note that symptoms can appear at any age and if not treated can result in serious illness and premature death. The disorder is characterized by an excess of growth hormone. Symptoms include abnormal enlargement in bones of the arms, legs, and head. The bones in the jaws and in the front of the skull are typically the most affected. Acromegaly may also cause thickening of the soft tissues of the body, particularly the heart and accelerated growth leading to tall stature. In most cases, acromegaly is caused by the growth of a benign tumor (adenoma), affecting the pituitary gland.

Organizations related to Acromegaly
  • Canadian Multiple Endocrine Neoplasia Society, Inc.
    1432 107th Street
    North Battleford None S9A 19
    Phone #: +1 -1 3-06 445 8436
    800 #: --
    e-mail: hockey_freak99@hotmail.com
    Home page: N/A
  • Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg MD 20898-8126
    Phone #: 301-251-4925
    800 #: 888-205-2311
    e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
    Home page: http://rarediseases.info.nih.gov/GARD
  • NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
    1 AMS Circle
    Bethesda MD 20892-3675
    Phone #: 301-495-4484
    800 #: 877-226-4267
    e-mail: NIAMSinfo@mail.nih.gov
    Home page: http://www.niams.nih.gov/Health_Info
  • Pituitary Network Association (PNA)
    P.O. Box 1958
    Thousand Oaks CA 91358
    Phone #: 805-499-9973
    800 #: --
    e-mail: pna@pituitary.org
    Home page: http://www.pituitary.org,

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Last modified Tuesday, September 07, 2010