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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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a medical condition, always seek the advice of your physician or other qualified health
professional. NORD's reports provide a brief overview of rare diseases. For more specific
information, we encourage you to contact your personal physician or the agencies listed as
"Resources" on this report.
Copyright 1989, 1999, 2000, 2009
NORD is very grateful to Lewis Holmes, MD, Massachusetts General Hospital, Unit Chief, Genetics and Teratology, Pediatric Service, Director, Genetic Counseling &
Screening Services, Perinatal Diagnostic Unit, for assistance in the preparation of this report.
Synonyms of Amniotic Band Syndrome
- ABS
- Amnion Rupture Sequence
- Amniotic Bands
- Amniotic Band Sequence
- Amniotic Deformity, Adhesions, Mutilations (ADAM) Complex
- Congenital Constriction Rings
- Constriction Band Syndrome
- Limb Body Wall Complex
- Streeter Anomaly
- Streeter Bands
- Streeter Dysplasia
Disorder Subdivisions
General Discussion
Amniotic band syndrome is a well-known condition potentially associated with a variety of different birth defects. It is important to note that no two cases of amniotic band syndrome are exactly alike and that the associated symptoms are highly variable. The severity of amniotic band syndrome can range from a single, isolated finding to multiple, disfiguring complications. The arms and legs are most often affected. The head and face and, in some cases, various internal organs can also be affected. The exact cause of amniotic band syndrome is unknown and controversial. Two main theories have been proposed to explain the development of the disorder. One theory attributes the disorder to causes that arise internally within the fetus (intrinsic theory); the other theory attributes the disorder to causes acting upon the fetus externally (extrinsic theory). It is likely that both internal and external factors can cause amniotic band syndrome, and that the cause of the disorder in one infant may be different from the cause in another infant.
Organizations related to Amniotic Band Syndrome
- Birth Defect Research for Children, Inc.
800 Celebration Ave, Suite 225
Orlando FL 34747
Phone #: 407-566-8304
800 #: --
e-mail: staff@birthdefects.org
Home page: http://www.birthdefects.org
- Fetal Hope Foundation
9786 S Holland Street
Littleton CO 80127
Phone #: 303-932-0553
800 #: 877-789-4673
e-mail: info@fetalhope.org
Home page: http://www.fetalhope.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda MD 20892
Phone #: 301-496-5133
800 #: --
e-mail: N/A
Home page: http://www.nichd.nih.gov/
- Newlife Foundation for Disabled Children
Newlife Centre
Hemlock Way
Cannock
Staffordshire Intl WS11 7GF
Phone #: 015-43 -462 777
800 #: N/A
e-mail: info@newlifecharity.co.uk
Home page: http://www.newlifecharity.co.uk
- Reach: The Association for Children with Hand or Arm Deficiency
P.O. Box 54
Helston
Cornwall, Intl TR13 8WD
Phone #: 084-5 1-306225
800 #: --
e-mail: reach@reach.org.uk
Home page: http://www.reach.org.uk
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